So I am over here, helping to bring Down syndrome awareness to Wellsphere. If there is anyone else that wants to help me please sign up. You can use the button that is in my sidebar.
Penelope is scheduled to have her MRI on Feb. 25. I am a little nervous. They will need to sedate her, but at least this way the cardiologist will have a great picture of the heart and all the vessels to figure out if the repair is failing in anyway. Clearly my little girl is thriving and I am not expecting bad news. Please pray that her little heart is working as it should! I am kind if interested in the MRI picture. If anyone else has had experience with this sort of thing with their toddler, please let me know how it went.
A blog about my daughter growing up and facing the joys and challenges of growing up with Down syndrome and Tetralogy of Fallot while enjoying the love of a rough older brother. (Look how purple her feet were before her heart repair.)
Wednesday, January 28, 2009
Tuesday, January 27, 2009
Homework time for Nathaniel is a fun time!
Tuesday night homework consists of finding rhyming words for Nathaniel's 10 spelling words. Inevitably there are 1 to 3 words that do not have a rhyme, such as "also," I mean what do you do for that!?? His last word on the list to rhyme was "close." We already had "nose- hose" and "rose - doze" so he was thinking really hard about this one. I tried to give him a clue and I asked him to think of what was on his foot. He said, "skin?" I said, "nope, what is on the tips of your feet?" He replied "Your toenails?" I said "close, what if you take the nails off?" (I was going for toes.) Nathaniel's mouth dropped open and he stared at me for a minute. "Ew, that is gross and it would hurt!!!"
Friday, January 23, 2009
A NEW BLOG!!
My mother has started a blog too! Stemming from her love of books, she will be posting about new releases, old releases, and anything else that comes to mind about the authors that are on her radar! Go visit her at EllsBookReports.
Thursday, January 22, 2009
Dillon update
I am such a bad friend. I told Mel I would post an update on her facebook wall last night but I feel asleep instead. Facebook acess is restricted here at work so if anyone else out there wants to write on her wall please do so. Dillon was brought to the hospital yesterday because after a few days of refusing to eat or drink he seemed ill again. They ran some blood tests to rule out some bad things, but his blood work came back normal today. Yay!!! They will let Dillon leave the hospital after they put in a G-tube or NG-tube. They are not sure which is best for him at this point. Melissa will need support either way because this is a tough time for her, but we all know that this will be the best thing for Dillon. Please pray that the doctors and Melissa are able to make the right decision and that Dillon feels better real soon.
btw, Penny is feeling better today
btw, Penny is feeling better today
Sunday, January 18, 2009
My poor baby
She is miserable!! She had diarhea a few times in her sleep and so she did not sleep well. We have been up since 5:30 but she will not go down for a nap!! That led me to the point where I have left her in her crib to cry. I HATE DOING THAT, but don't we all have to do this at some point? She wouldn't go to sleep for the 30 minutes that I rocked her. And I know her, she is over tired at this point. If she starts her "I am dying" scream, I will go get her, but for right now, she just has the "Pity Me" scream.
Saturday, January 17, 2009
We are almost well
Scott is still a little run down but he is feeling much better. I felt really crappy on Friday, but never got sick. Nathaniel is whinier then ever but he hasn't gotten sick. Penelope, still is having diarhea. She doesn't seem to be too upset over it, but it is blowing through her huggies every time. She is taking a long step to get to the coffee from the couch and the other way around. We missed my niece's birthday party today. I felt really bad, but I didn't want to infect all of her guests.
I know this was a short post, but I wanted to let everyone know I was still out there. goodnight!!
I know this was a short post, but I wanted to let everyone know I was still out there. goodnight!!
Thursday, January 15, 2009
I CAN'T SHAKE THE FEELING THAT MY HOUSE STILL SMELLS LIKE THIS!

While Scott was feeling miserable upstairs, this morning was kind of normal with Penny, I made her some eggs and fed her breakfast while getting Nathaniel ready for school. She was clingy afterwards and whiny which is really unlike her, especially so soon after getting up. I figured she must have woken up earlier then I thought and decided she must be tired so I gave her a bottle of milk and prune juice just like she prefers it. :) I even warmed up the bottle because it was really frigid in our house and I decided that I like my hot tea or coffee in the morning, she would certainly enjoy some warm milk. Within twenty minutes or so she projectile vomited the milk and her breakfast of eggs. She was coughing a little before she got sick and I though maybe she gagged on herself and it was not related to Scott being sick. (me, ever the optimist!!) Well, about thirty minutes after that she threw up again! This time I was able to run her to the bathroom and most of it got in the toilet. What was strange was that she was just so darn happy in between bouts that again, I thought this must have been a coincidence. I changed Penny and we brought Scott to the ED. While we waited for triage Penny was sitting on my lap and began to cough and then. . . you guessed it. She threw up on me! She was not happy about this but after I cleaned her up she was happy again.
When Penny and I left Scott to his CT scan, I decided to meet my mother for lunch at Friendly's because I was still not convinced that Penny was actually truly sick. Five instances of vomiting within 1/2 day is not enough for me. She did not exhibit a fever and she was happy and playful, not lethargic or cranky. I gave her some apple juice while she waited for her lunch of mac and cheese. Well, after only 2 bites of the lunch, she lost it again. We finished out our meals because as long as she wasn't upset, I decided to stick around. I let her have some ice cream and she tolerated that well. At home I put her down for a nap and she went right to sleep. I was feeling bad at that point since she did not eat too much, but she showed no indications of being hungry, so I tried to push those guilty feelings aside.
Penelope was sleeping when I got the call from Scott at 4:30 that I could pick him up. I had to wake her up, but she didn't get too mad at me. This is about the time that she usually would wake up from her nap anyway. Nathaniel, Penny, and I drove to get Scott and on the way home he told me that they diagnosed him with diverticulitis that was probably provoked by the stomach bug. Diverticulitis can cause vomiting and diarrhea on it's on, but it would be too much of a coincidence that Penny was sick too. I think it is more likely that he was sick with a bug first.
At home, Scott went right to bed and I spent some time downstairs with my happy little girl. She had a dinner fit for champions : Saltines and Pedialyte. I guess I am very blessed that she will eat Saltines on her own. She did spread some crushed saltines ALL OVER MY LIVING ROOM. Who know that 5 saltines could cover such a large diameter of area? About one hour into play, her bottom made so much noise and there was a very large mess for spread everywhere for me to clean up. I feel like I am still trying to get the stench out of the air. I just put her down to bed and I she hasn't made a peep. Nathaniel is out at McDonald's night with my brother Joey. His treat no less; what a guy!
I just hope that all of my babies wake up all healthy tomorrow. Good night!!
Wednesday, January 14, 2009
Wordless Wednesday
Tuesday, January 13, 2009
Unreal!!??!
I first heard of this from Tricia's blog and then Cynthia had a great link that I wanted to share. Yesterday, a statement was issued that an organization called Changing Minds Foundations claim they can "cure" Down Syndrome. You can find the link to the Changing Minds Foundation through Tricia. Below, is an excerpt from a Down syndrome organization commenting on the assertions of Changing Minds.
"Introduction
We are a group of healthcare professionals, scientists and support organizations who care for and about people with Down syndrome. We wish to provide families with information about a proposed "treatment" for Down syndrome. We recognize that all parents wish to improve the lives of their children with Down syndrome and are interested in treatments, therapies and interventions that can help. We respect these wishes. At the same time, we are concerned that these "treatments" are potentially dangerous."
You can read the rest of this article here.
"Introduction
We are a group of healthcare professionals, scientists and support organizations who care for and about people with Down syndrome. We wish to provide families with information about a proposed "treatment" for Down syndrome. We recognize that all parents wish to improve the lives of their children with Down syndrome and are interested in treatments, therapies and interventions that can help. We respect these wishes. At the same time, we are concerned that these "treatments" are potentially dangerous."
You can read the rest of this article here.
More Prayers for Dillon
I just got a voice mail from Dillon's mother that he is going back to the hospital to be admitted for his stomach problems and dehydration issues. It is very serious in that this little peanut cutie is acting very lethargic and he needs to be gaining weight, not losing it. Please pray that he will come out of it ok. Thank you!
Monday, January 12, 2009
Sunday, January 11, 2009
Penny and her boyfriend!
These photos are from awhile ago but I thought it would cheer up Dillon's mother because poor Dillon isn't feeling well. Here is Dillon and Penny together at the book party with Jessica as the consultant!
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Special prayers for a special guy
If you are not familiar with Parker's story, please visit Tammy's site and wish Parker good luck. He had a pull through surgery several months ago and is just now suffering from a bowel obstruction. Prayers for Parker!!! We hope you do well in surgery and recover swiftly.
Saturday, January 10, 2009
Ok, I need to relax because I have been searching the Internet on what my score really means. I guess the verbal section is harder for the typical student that takes the test so a score of 570 in the verbal means I am in the 78th percentile for verbal skills and a score of 710 in the quantitative section places me in the 72th percentile for math skills. How can I be under in math!!! I feel so inadequate.
"Veni, Vidi, Vici"
Well, I am glad it is over. That is one good thing. I won't know my score on the analytical writing section for 2 weeks or so, but on the math section I scored a 710 out of 800. I am pretty happy that I got over 700. In all the practice tests my score was not so good. My verbal section was a lousy 570. I felt pretty good about some of the analogies, but the antonym section completely blew me away this time. Oh well, I have some time to take it again if 570 is not good enough. Combined score is a 1280, which is pretty much what I got on the SATs. (1260 the first time).
I CAN GO ON WITH MY LIFE!!!
I CAN GO ON WITH MY LIFE!!!
Thursday, January 8, 2009
Some Christmas PHotos
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I know that I haven't done well in the department of photo sharing our Christmas story, but suffice it to say the kids had a great Christmas. Nathaniel was hard at work playing with his Lego sets, he was especially proud of Indiana Jones. Penny loved her baby that Santa brought and enjoyed her new bath toy!
Wednesday, January 7, 2009
Penny and her dancing skills
That is Scott playing one of his unfinished songs in the backround. We think it is her favorite song. She was drinking her night bottle and started to boogie to the music. Scott and I are amused by her abrupt contact with the bottle.
Tuesday, January 6, 2009
BRING IT!!
As I said in an earlier post, Scott got Sing Star Vol. 2 for his birthday. It is really so much fun, but then I am a huge kareokee fan. He downloaded some additional songs to the "library" and we battled each other in Duran Duran's "Ordinary World" We were almost tied. I was so happy with how well I did!!! Then we did the Darkess, you know that song with all the falcetto "I believe in a thing called love. . . just listen to the rythm of my heart . . . " I am pretty sure we both did pretty aweful with this song, but Scott still beat me. We gave Penny a microphone and we were hoping that she was going to start singing but she was only interested in eating the microphone and licking it. We did hear a lot of heavy breathing! lol. She started dancing when Scott began to sing "Uptown Girl" by Billy Joel.
Only a short few months ago, Penny would refuse to walk more then 5 or so steps while one of us held her hands. Now, she will do laps around the house with her walker and/or one of us holding onto her. She has this huge grin on her face and she is just so happy to be up and around. I can't wait for her to be walking on her own. She is going to be 20 months soon.
Only a short few months ago, Penny would refuse to walk more then 5 or so steps while one of us held her hands. Now, she will do laps around the house with her walker and/or one of us holding onto her. She has this huge grin on her face and she is just so happy to be up and around. I can't wait for her to be walking on her own. She is going to be 20 months soon.
Sunday, January 4, 2009
Another Nathanielism
I need to preface this post with: "I love my mother."
I took the boy to Kohls yesterday to spend my Kohls cash and had settled on a pair of jeans to try on. He is still at an age where I take him into the stall with me, so when I took off my pants to try on this likely candidate, Nathaniel proclaimed, "Mommy! Your butt is as big as Grandma's!" Amongst the snickers from ther other stalls I asked him if maybe my butt is a little bit smaller than my mother's. I mean, who wants to be told they look like their mother from behind, right? Nathaniel agreed that maybe, my butt was just a little bit smaller. Ok, I guess that will have to do.
On a brighter side, I bought a very comfortable, cute looking pair of jeans for myself.
I took the boy to Kohls yesterday to spend my Kohls cash and had settled on a pair of jeans to try on. He is still at an age where I take him into the stall with me, so when I took off my pants to try on this likely candidate, Nathaniel proclaimed, "Mommy! Your butt is as big as Grandma's!" Amongst the snickers from ther other stalls I asked him if maybe my butt is a little bit smaller than my mother's. I mean, who wants to be told they look like their mother from behind, right? Nathaniel agreed that maybe, my butt was just a little bit smaller. Ok, I guess that will have to do.
On a brighter side, I bought a very comfortable, cute looking pair of jeans for myself.
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