
A blog about my daughter growing up and facing the joys and challenges of growing up with Down syndrome and Tetralogy of Fallot while enjoying the love of a rough older brother. (Look how purple her feet were before her heart repair.)
Monday, April 28, 2008
"So Much Time and So little to Do. . . "
We have also been experimenting with the kind of food that she eats. She loves baby Gershwin pickles of all things. She also loved the vegetable beef that I made for her in batches to freeze. I am debating whether or not to make more, we are giving her table scraps more and more. . .
Her last PT visit on Thursday went super as well like usual. We are working on her stepping by guiding her to walk all over the place. She does seem a little more interested in cruising, but she forgets a lot that she has a left foot! Her right foot goes up and down like a reflex, but her left leg likes to stay put. She flat out refuses to be put in any position that would coax her into crawling. She is very happy rolling around "thank you very much"
Oh and Scott is convinced she says "Mama." I'd like to say I believe him. She is so cute with the "dada" and the "Baba" it is about time I get some play too!
Saturday, April 12, 2008
I am sure this looks familiar to some
Thursday, April 10, 2008
Penny's 1st day at the Park
In her big girl Highchair
Penny is a Big Girl Now!
Wednesday, April 9, 2008
Penny won something!
Saturday, March 29, 2008
OMG 10 months is huge for you!
Pictures for the Masses
Wow it has been awhile!
I think all the kids had a really good time. I am pretty proud of myself that I didn't go overboard with the candy this year.
Not too much to report on Penny. She doesn't see her Cardiologist until May 9 and her pediatrician in May as well, maybe even June since her birthday is May 29. We missed two weeks with the physical therapist because first Penelope had a fever and then she was on vacation. We saw her on Thurday and boy! was she impressed. Penny waved goodbye to her and I think she teared up a little bit. Dr. Yvette could not say enough great things about how well Penny is doing, "for her to know that there is a social implication behind waiving, to have that comprehension is a huge thing at 10 months!" I felt like such a proud Momma! Then later I had her on the floor to play while I was reading and we looked up at each other. She smiled and waved at me! Up until that point I thought she was only copying, but she did it this time on her own. Also, the big milestone for the week is that she is doing a great job of sitting on her own now. At least five minutes at a time she can keep herself balanced. This was brand new this week so I will have to get a picture of her when she is in a good mood and post it. I also need to get the pictures of her in her beautiful Easter dress and get those posted as well.
I hope everyone else out there had a great Easter, I know it was hard on Scott and his family to have this first Easter without their mother. I miss her a lot and Nathaniel still talks about her a lot.
Right now I am trying to get her to go down for a nap. She must be taking "no sleeping" lessons from Nathaniel or something.
Wednesday, March 5, 2008
DR.'s Appt 3/04
Right now she has one of those unexplained fevers. She has had it since Wed. morning. We took her back to the doctor on Wednesday afternoon, but all of her glands and canals are clear. Then today I noticed a stinky urine diaper. I'm sure her discomfort is from teething, but what if it is a UTI. Pretty uncommom, but I would hate to have her suffer through something so treatable. We know which antibiotics to put her on, and which ones she is sensative to.
I just want my little Penny pooper to feel better.
Sunday, March 2, 2008
My Little Princess
Friday, February 29, 2008
Dear Penny who is 9 months
Sunday, February 24, 2008
Wednesday, February 20, 2008
When will you sit up?
Oh, and the mythical being post, I had Penny in mind when I answered the questions. She is the pegasus. lol!
Sunday, February 17, 2008
I'm a mythical being!!
You Are a Pegasus |
![]() You are a perfectionist, with an eye for beauty. You know how to live a good life - and you rarely deviate from your good taste. While you aren't outgoing, you have excellent social skills. People both admire you - and feel very comfortable around you. |
Saturday, February 16, 2008
Something Interesting did Happen
Click here to see the video