On another post I will have to share my experience at the CT Down Syndrome Congress convention. But for now I want to mention that I won the door raffle and picked up several books that I am very excited about. One was "My Sister, Alicia May." For a long time, in the back of my head, I have been wanting to get a sibling with Down syndrome book for Nathaniel, but never got around to it. This book was so good it moved me to tears. Not only is the little darling girl, Alicia May, a spirited strawberry blonde like Penny, but Alicia May also had heart surgery when she was born just like Penny. I just loved the story and Nathaniel loved it too. Thank you Nancy for donating your book of poems, the book "My Sister Alicia May" and the permision to post your poem and for donating your book. I would have missed out for sure on this great read!!!
You can click on Nancy Tupper Ling's name below to link over to her website, or click on the title to link to the poem itself. I highly recommend you check it out!
Our Fragile Emissary
By: Nancy Tupper Ling
With modern screening and such
they wonder why
you're here, on this earth
in our home
and in our arms,
after all, anyone
with any sense would have resolved
this problem of you
pre-birth, pre pain.
Blonde Beauty,
tiny as you are,
you catch their stares,
strangers' second glances
into tender baby blues.
And your young
sweet ears hear whisperings
("Down's," "defects")
words dropped loosely
at extra-chromosomed girls.
With such stinging receptions
how we long to shelter you,
surround you; keep your
gentle smiles to ourselves.
Instead, we hold you
up, for others to see;
let you, our fragile emissary
speak to an imperfect world.
A blog about my daughter growing up and facing the joys and challenges of growing up with Down syndrome and Tetralogy of Fallot while enjoying the love of a rough older brother. (Look how purple her feet were before her heart repair.)
Thursday, November 19, 2009
Wednesday, November 18, 2009
Whew! I've been gone a long time
Since I am no longer working behing a computer eight hours a day, I find it hard to sit down and update my blog. Actually I have been a little busy. I took the Praxis II exam for high school math teachers and I have been finishing up my admissions essay. But more importantly, I have been settling in as a stay at home mom. I actually do house work. Imagine that!! I was so spoiled by Scott. But I need to pull my own weight and do stuff so that he wants to keep me around :)
I have Halloween pictures on my facebook account. Unfortunately, after I got the photos uploaded to facebook, but before I got around to uploading them to flicker or to my external hard drive, the device that I use to connect the memory stick to the pc broke so I have to get a new one. It is only $15 a Walmart, it is just a matter of getting over there. The card slot on my pc has been broken for a while and we lost the cord that came with the camera, it is not a typical usb cable. The cost to replace our Sony cord is $80 so I would rather get that other thing. Too bad, our little princess was great!
Penny is doing all kinds of amazing things and I have to say that I love staying home with to be a part of development. She says circle (kirkle lol) and draws a round sort of thing that closely resembles a circle. She started to say "up" on Monday and yesteday I swear she said "yeah." We do a lot of coloring and work with shapes. I sort of dabbled with color recognition, but I don't know if she is ready for that. She does get really engaged with shapes though so I am going to stick witht that.
We hit a museum once sometimes twice a week since we have free admission to practically everywhere. And I still have time set aside for her naps.
I have Halloween pictures on my facebook account. Unfortunately, after I got the photos uploaded to facebook, but before I got around to uploading them to flicker or to my external hard drive, the device that I use to connect the memory stick to the pc broke so I have to get a new one. It is only $15 a Walmart, it is just a matter of getting over there. The card slot on my pc has been broken for a while and we lost the cord that came with the camera, it is not a typical usb cable. The cost to replace our Sony cord is $80 so I would rather get that other thing. Too bad, our little princess was great!
Penny is doing all kinds of amazing things and I have to say that I love staying home with to be a part of development. She says circle (kirkle lol) and draws a round sort of thing that closely resembles a circle. She started to say "up" on Monday and yesteday I swear she said "yeah." We do a lot of coloring and work with shapes. I sort of dabbled with color recognition, but I don't know if she is ready for that. She does get really engaged with shapes though so I am going to stick witht that.
We hit a museum once sometimes twice a week since we have free admission to practically everywhere. And I still have time set aside for her naps.
Subscribe to:
Posts (Atom)