
I pray that you all find yourselves happy and at peace on this joyous day. Merry Christmas everyone.
A blog about my daughter growing up and facing the joys and challenges of growing up with Down syndrome and Tetralogy of Fallot while enjoying the love of a rough older brother. (Look how purple her feet were before her heart repair.)
This was the only half-way decent photo Scott got of the Children with Santa. I think I should have been in charge. hmmm. Anyway, the children had lots of fun and that is the point right?

My beaver. . . I mean baby, likes to chew into the wood of her crib. The straight sides have a plastic guard over it; however the curved head and end sides are exposed. When she is quiet in her room (or perhaps when light from the full moon pours through her bedroom window, transforming her into a beaver-by) she must be staning at the end of her crib and lick the crib until she finds a spot that she likes to bite into. OVER AND OVER AND OVER AND OVER AND OVER again. I first noticed small bite marks about 3 or 4 months but I didn't put much thought into this because I thought she would grow out of this quickly. I mean, how is this appealing. But I noticed yesterday that the biting has not stopped and it is clear that she is licking the varnish off the rest of the edge. Can anyone suggest something here. I can't think of something that would be flexible to cover the edge the right way, but not be bite-able. Can you?
I had to say good bye to my little 6 month old cutie face and leave her the arms of some very capable doctors and nurses for her second heart surgery to do a complete repair of her Tetralogy of Fallot defect:
And the next time I saw her she looked like this, but with the breathing tube still in. ( I just couldn't take a picture of her with the ventilator.)

I cannot/ do not want to put it down. Half of me wants to say that the school systems really haven't changed that much and that maybe I am just looking for an excuse for my son's activity level. But then the other half looks to my son and I want to know what I can do to help him. Does anyone else have any opinions they want to share? At any rate, this book "The Trouble with Boys: A Surprising Report Card on Our Sons." has been interesting so far.