Wednesday, June 25, 2008

Heart Link I discovered

I never realized that the Little Hearts Website linked you to a John Hopkins tutorial website that gives really great visual information on all the different kinds of heart defects. I finally understand what an overiding aorta means when reading the information on Tetrolgy of Fallot.

Friday, June 20, 2008

All in a day's hard work

Penny is executing her military crawl with such perfection; I am afraid she will be recruited anyday. She is so funny, she will get on her elbows, belly, and legs and with one arm in front of the other, and some help from her hind quarters she inches along the floor. I don't believe her belly gets a millimeter off the floor, but it certainly gets her around very effeciently. She can transverse our living area in a matter of moments. :) I just love her so much. Her PT is very proud of the progress she is making. She has been pulling her self to a standing position for awhile now (maybe a month) but she needs to be in a sitting position first and to my knowledge she has not figured out how to get into a sitting position.

She is doing very well with mealtimes too. I like to give her an opportunity to feed herself with a spoon often. Scott doesn't approve because of the mess, but how else is she supposed to learn? She likes sandwiches, peanut butter and jelly and grilled cheese being the only two she has tried. She also likes Gerber graduates ravioli. She will scarf that stuff man! She likes ice cream and yogurt. A whole world of possibilities opened up just a few weeks ago when she turned 1.

I am still working with her to say "mama" she just doesn't want to. After I say it a few times, she starts to respond with "blah!" Oh well, she will get there when she is ready. . .

Saturday, June 14, 2008


Looking back through some pictures that are now almost a year old. How different things are. This photo was taken while Penny had the BT shunt. Maybe the photo shoot was stressing her out.
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Friday, June 6, 2008

I totally forgot cake pictures

And considering how much work I did on these I most certainly want to share. . .

Monday, June 2, 2008

Birthday Pictures

The weather held up. I was afraid that there would be more rain, but it all worked out. It only rained for about 90 seconds or so. :) And, even though her teeth were bothering her. Penny made it through the day. I hope she had a good time because I sure did.

Here she is eating peanut butter and jelly for the first time. I gave her a 1/4 piece and she scarfed it. I had to give her another piece. I am so proud of my little 1 year old.
I finally got a quasi smile out of this kid. She really makes me work for it.
Here is Penny with Nathaniel of course, and her friend Dillon that came to play! She was so happy to meet him finally. Can you see that this girl is giving me attitude already because she does not want her picture taken again.
Typical!! She is trying to have a meaningful conversation with her companion and I bet he isn't even listening. MEN!

What a busy Weekend

Pictures from the Little Hearts picnic!
My little girl was quite happy to be held by her mommy. Even though she was teething something terrible!

Yesterday we went to the Little Hearts picnic and we had a fabulous time. We ran into some familiar faces from the Pediatric Cardiology Group right here in Hartford. The boys played. Penny just enjoyed the sun and the wind and the walks. We had such a good time, we cannot wait to go next year.
This was a great opportunity to meet other parents and children with congenital heart defects. There is just so much support out there you know! I saw many many children with HLHS, which still blows my mind considering what a tough road that journey must be. We ran into quite a few children with TOF as well and I got to speak with a few mothers.